7th Annual Wisconsin
5K Run/Walk to Stop the Cycle of CVS
Use Current Events Quick Link >>>
(in the right column) for More Info
RESEARCH VOLUNTEERS WANTED:
The volunteers will have to live within 50 miles of
the Medical College of Wisconsin.
Researchers at the Medical College of Wisconsin are seeking individuals with Cyclic Vomiting Syndrome, over the age of 18,
to participate in a study on endocannabinoid concentration in patients with CVS. Your participation will help us enhance
patient care in the future.
We can also send nurses on home visits to collect samples in an episode if the CVS patient is within a 50 mile radius of the
Medical College of Wisconsin.
Eligible volunteers will receive compensation for their participation.
For more information,
Dr. Venkatesan/Megan Campfield
at (414) 955-6836
or Yelena at 414-955-7095
Saturday, May 11th, 2013 from 4-8pm
RSVP by Wed., May 1, 2013
Download your invitation and more details HERE
DONATE ONLINE HERE
Kane County Chronicle Article:
"Geneva girl spreads message about
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at right of page >>>
Dr. Boles FaceBook Page
Dr. Richard Boles is a Medical Geneticist who specializes in treating and researching Mitochondrial Disease and Functional Disorders.
Dr. Boles practices clinical medicine in the Division of Medical Genetics and conducts research at Children's Hospital Los Angeles. He is also the Medical Director at Courtagen Life Sciences, Inc. This Facebook Page is not designed to offer medical advice but rather to provide information about some of Dr. Boles' mitochondrial research and advocacy efforts. The page is run by a set of administrators on behalf of Dr. Boles.
New Research Study:
Anxiety Risk in Youth with Cyclic Vomiting Syndrome: Threat Perception, Coping and Physiological Reactivity
If you are between the ages of 13 to 18 and have cyclic vomiting syndrome, we invite you to participate in a study on anxiety risk factors in cyclic vomiting syndrome
at the Children's Hospital of Colorado.
FDA Safety and Innovation Act Signed:
A Monumental Step Toward The Development of Safe and Effective Treatments for Millions of Americans With Rare Diseases
Welcome to the official website for the Cyclic Vomiting Syndrome Association (CVSA). As you probably agree, CVSA is a very unpleasant name for a non-profit organization, but CVS is an extremely unpleasant illness, and we need to make it easy for people to find us. I hope that at the minimum you will find our web site informative about CVS and hopefully go beyond that to find out more about our work of outreach to those still suffering in isolation with this mysterious and disruptive illness.
CVSA was founded by myself and a handful of parents and patients in 1993 after the majority of the founders, had been dealing with CVS without a diagnosis or hope of treatment. My daughter was plagued with CVS episodes for eleven years before she was diagnosed. We continue to work past the unpleasant name, against the odds of a small non-profit, and beyond the frequent medical skeptics. CVS causes far too much suffering for us to stop.
Don’t hesitate to share your thoughts and/or needs with us as you discover much-needed information about this difficult illness.
Kathleen Adams, B.S.N., R.N.
President and Co-Founder
Cyclic Vomiting Syndrome Association
The Cyclic Vomiting Syndrome Association (CVSA) serves the needs of cyclic vomiting syndrome (CVS) sufferers, their families and professional care givers by raising awareness and providing education and support to those affected by cyclic vomiting, abdominal migraine and related disorders while advocating for and funding research.
Established in 1993, CVSA has grown from a handful of interested parents and professionals, into a network that includes over 40 medical advisors and volunteers serving in the U.S. and Canada, as well as over 30 other countries worldwide.
The association’s primary focus is working toward a cure, through the support of several promising research initiatives, and supporting its members by strengthening communications and offering a wide range of resources for education and support.