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We invite you to participate in the below studies
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Study # 1 Who can participate? Everyone!!! Please respond even if you have not taken CoQ10, L-Carnitine, or amitriptyline! |
Study # 2
Please respond if you have been to an ER for treatment of CVS. |
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Co-Enzyme Q10, L-Carnitine, and Amitriptyline Usage in Cyclic Vomiting Syndrome (CVS): A Research Study
Principal Investigator: Richard Boles, M.D. Co-Investigators: Kathleen Adams, RN, President CVSA Amy Preston, M.S.Ed., Vice President CVSA Mary Rachael Lovvett-Barr, CVSA Board Member-at-Large Jodie Jonas, CVSA Canadian Coordinator |
CVS in the Emergency Room
This project is under the leadership of: B U.K. Li, M.D. (Director) Sally Tarbell, Ph.D. (clinical and research psychologist), CVS Program at Children’s Hospital of WI Thangam Venkatesan, M.D. Director, Adult CVS Program at the Medical College of WI Kathleen Beckmann-Steven DO Children's Hospital of WI ER Kathleen Adams, B.S.N., R.N., President CVSA |
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What do I need to do?
Option 1: Use the below link for Survey Monkey to complete the questionnaires in an online, user-friendly format!
Option 2: Use the pdf documents below to complete the questionnaire and return via one of the following methods: Mail: CVSA Research Study P.O. Box 4164, Clifton Park, NY 12065 fax: 414-342-8980 e-mail: Click here to send questionnaire via e-mail Questions? Please click here to contact us |
What do I need to do?
The CVSA Board of Directors set as one of its goals for 2007 to begin a formal process of educating Emergency Room physicians and para-professionals about Cyclic Vomiting Syndrome (CVS). We are asking for your participation in a brief survey via the link in this message in order to help us plan our educational approach.
To participate: Use the below link for Survey Monkey to complete the questionnaire in an online, user-friendly format!
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Survey Monkey - Click here to complete the questionnaires online!!! |
Survey Monkey - Click here to complete the questionnaire online!!! |
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pdf Format |
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Study # 3 Who can participate? Adults with CVS |
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Autonomic dysfunction in adults with Cyclic Vomiting Syndrome Thangam Venkatesan, MD - Care for Adults with CVS Medical College of Wisconsin - Division of Gastroenterology |
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Subjects are currently being recruited for participation in study at the Medical College of Wisconsin to start around December 2007. The aim of the study is to prospectively evaluate the presence of autonomic dysfunction in patients with CVS. Autonomic function testing including the thermoregulatory sweat test, postural changes in heart rate and blood pressure and R-R variability responses to deep breathing and the Valsalva maneuver on EKG will be performed to screen for abnormalities in the automatic functions of patients with CVS. Mitochondrial dysfunction may play a part in these abnormalities. Studies will take place in Milwaukee, Wisconsin.
Criteria for participation Adults who meet the following three criteria and had episodes at least 6 months before they were diagnosed. 1. Episodes that are similar in when they start and how long they last. 2. Three or more discrete episodes in the prior year 3. Absence of nausea and vomiting between episodes In addition, all subjects will have had the necessary work up to exclude other organic diseases resulting in cyclic vomiting.
Exclusion criteria Exclusion criteria include s the presence of other diseases that affect autonomic testing (e.g. any chronic pain disorder, or endocrinological, cardiovascular or other neurological diseases). This collaborative, multidisciplinary research effort betweenthe divisions of Gastroenterology and Neurology/Neurophysiology will be pivotal in exploring the research potential in this field and provide the much needed answers to this disease which still remains an enigma.
If you are interested, please contact:
Thangam Venkatesan, MD Medical College of Wisconsin Division of Gas troenterology (414) 456-6836 |
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