Cyclic Vomitting Syndrome Association

News and Current Events

7th Annual Wisconsin

5K Run/Walk to Stop the Cycle of CVS

Saturday, June 1st, 2013

.5K Run 9am
5K Walk 9:15am
.25 Mile Kid’s Fun Run 8:40am

Rotary Builiding Frame Park, Waukesha, WI

Download brochure w/registration form HERE

Can't participate, but you would like to make a donation to the walk? Donate HERE!

First Annual

Tampa Bay Cyclic Vomiting Syndrome Association Golf Tournament

Saturday, September 14th, 2013
TPC Tampa Bay
Registration: 11:30 am
Shotgun Start: 1:00 pm
$125 entry fee per player
Format: 4 person scramble

Download brochure w/registration form HERE

For information about Chandra Wilson’s partnership with CureMito! and more information about mitochondrial disease go to

www.curemito.org

Cute Mito

Chandra Wilson, "Dr. Bailey" on ABC's Grey's Anatomy, recently visited Children's Hospital of Wisconsin and the Cyclic Vomiting Syndrome Program team. In this video, Chandra Wilson provides advice for parents of children with cyclic vomiting syndrome. The Cyclic Vomiting Syndrome Program at Children's Hospital of Wisconsin is one of only a few programs of its kind in the country, and the largest focused on children. Learn more: CHW.org

“GREY'S ANATOMY”
Featured Adult Patient with CVS

Episode Aired November 15th, based on illness of the
daughter of Actor/Director Chandra Wilson

A Message from Chandra:

At the 2012 CVSA family conference, I was specifically asked by our sufferers to find a way to get CVS on to Grey’s Anatomy. Grey’s historically focuses less on the medicine of our patients and more on the lives of our regular characters and how they are impacted by the medicine and personal issues. Still, I made a pitch to my producers for a two episode arc of a 25 year old male character who repeatedly comes in to the ER with what we know are classic CVS episodes, vomiting bile, writhing in pain, dehydrated and no one there with him to speak as his advocate. He would eventually tell of how his school/work/personal life has been impacted by his illness, and begs to be taken seriously and for someone to figure out what’s wrong. Just as he is about to go through an unnecessary exploratory Laparotomy as a last resort to see if something surgical was causing his episodes, he was to get diagnosed with CVS by Arizona Robbins who has CVS knowledge from working in pediatrics. But, I was offered Santa in a one episode arc. Weighing the pros, I decided that here was a vehicle to say the name Cyclic Vomiting Syndrome out loud on national television to up to 10 million viewers. Here was an opportunity to produce a Public Service Announcement to drive traffic to CVSA, its message board and Facebook page. Here was chance that for all that would be missing in the Grey’s storyline, your comments and commentaries and posts would fill in the blanks for anyone coming to CVSA for the first time looking for validation or a name to take to their physician or a community of support that they never knew existed. We collectively accomplished that last night.

Phones rang the next morning, hits were made to the website and comments were posted. Even the disappointed posts spoke graphically of the reasons why the content didn’t do enough justice to the experience of CVS way better than any episode of Grey’s Anatomy could portray. We would need a Television Movie of the Week centered on a family affected by the CVS of one of the family members in order to accurately expose what our lives are like as sufferers and caretakers.Maybe I have earned the credibility to accomplish something like that now for us.

Even as I write this, Sarina has just finished an 11 day stay in Children’s Hospital Los Angeles with one of her most violent episodes of relapsing CVS after almost 2 years of a break. I’m watching for every change in facial expression, keeping the trash can nearby, waiting for her gut to start regular motility again, eager for what is her normal energy level to return, praying that two days ago was indeed the end of this relapse so that she can go back to being a 19 year old college student with her whole life in front of her. That’s CVS.

SAVE the DATE

for these CVSA Events:

Wisconsin Walk

June 1, 2013

2014 11th International Adult and Family Conference

June 27-29, 2014

Cyclic Vomiting Syndrome Association, Hope Starts Here

News and Current Events