Cyclic Vomiting Syndrome Association

7th Annual Wisconsin

5K Run/Walk to Stop the Cycle of CVS

Use Current Events Quick Link >>>
(in the right column) for More Info

RESEARCH VOLUNTEERS WANTED:

The volunteers will have to live within 50 miles of
the Medical College of Wisconsin.

Researchers at the Medical College of Wisconsin are seeking individuals with Cyclic Vomiting Syndrome, over the age of 18,
to participate in a study on endocannabinoid concentration in patients with CVS. Your participation will help us enhance
patient care in the future.

We can also send nurses on home visits to collect samples in an episode if the CVS patient is within a 50 mile radius of the
Medical College of Wisconsin.

Eligible volunteers will receive compensation for their participation.

For more information, please contact
Dr. Venkatesan/Megan Campfield
at (414) 955-6836
or Yelena at 414-955-7095

Join Us
Saturday, May 11th, 2013 from 4-8pm

RSVP by Wed., May 1, 2013

Download your invitation and more details HERE

DONATE ONLINE HERE

Kane County Chronicle Article:

"Geneva girl spreads message about
often-misdiagnosed malady"

Click on "New Media" Quick Link
at right of page >>>

Dr. Boles FaceBook Page

Dr. Richard Boles is a Medical Geneticist who specializes in treating and researching Mitochondrial Disease and Functional Disorders.

Dr. Boles practices clinical medicine in the Division of Medical Genetics and conducts research at Children's Hospital Los Angeles. He is also the Medical Director at Courtagen Life Sciences, Inc. This Facebook Page is not designed to offer medical advice but rather to provide information about some of Dr. Boles' mitochondrial research and advocacy efforts. The page is run by a set of administrators on behalf of Dr. Boles.

New Research Study:

Anxiety Risk in Youth with Cyclic Vomiting Syndrome: Threat Perception, Coping and Physiological Reactivity

If you are between the ages of 13 to 18 and have cyclic vomiting syndrome, we invite you to participate in a study on anxiety risk factors in cyclic vomiting syndrome
at the Children's Hospital of Colorado.

More Information HERE

ADVOCACY ALERT

FDA Safety and Innovation Act Signed:
A Monumental Step Toward The Development of Safe and Effective Treatments for Millions of Americans With Rare Diseases

PDF of full Article HERE

A Message From the President

Welcome to the official website for the Cyclic Vomiting Syndrome Association (CVSA). As you probably agree, CVSA is a very unpleasant name for a non-profit organization, but CVS is an extremely unpleasant illness, and we need to make it easy for people to find us. I hope that at the minimum you will find our web site informative about CVS and hopefully go beyond that to find out more about our work of outreach to those still suffering in isolation with this mysterious and disruptive illness.

Photo of Kathleen Adams, BSN, RN, President

Kathleen Adams, RN, BSN, President and Co-Founder
of CVSA

CVSA was founded by myself and a handful of parents and patients in 1993 after the majority of the founders, had been dealing with CVS without a diagnosis or hope of treatment. My daughter was plagued with CVS episodes for eleven years before she was diagnosed. We continue to work past the unpleasant name, against the odds of a small non-profit, and beyond the frequent medical skeptics. CVS causes far too much suffering for us to stop.

Don’t hesitate to share your thoughts and/or needs with us as you discover much-needed information about this difficult illness.

Sincerely,

Kathleen Adams, B.S.N., R.N.
President and Co-Founder
Cyclic Vomiting Syndrome Association

Our Mission

The Cyclic Vomiting Syndrome Association (CVSA) serves the needs of cyclic vomiting syndrome (CVS) sufferers, their families and professional care givers by raising awareness and providing education and support to those affected by cyclic vomiting, abdominal migraine and related disorders while advocating for and funding research.

Established in 1993, CVSA has grown from a handful of interested parents and professionals, into a network that includes over 40 medical advisors and volunteers serving in the U.S. and Canada, as well as over 30 other countries worldwide.

The association’s primary focus is working toward a cure, through the support of several promising research initiatives, and supporting its members by strengthening communications and offering a wide range of resources for education and support.

Cyclic Vomiting Syndrome Association, Hope Starts Here

A Message From the President