International CVS Awareness Day March 5, 2022

International Awareness Day is an opportunity for everyone affected by CVS to help raise awareness. There are many ways to raise awareness and you can help!

This year, join CVSA as we light up bridges, buildings, and iconic places, in blue, to “Light up Awareness of the Cyclic Vomiting Syndrome”.

In Recognition of International Cyclic Vomiting Syndrome Awareness Day, held March 5th, 2022, the Niagara Falls Illumination Board has agreed to light up both the U.S. and Canada’s sides of Niagara Falls with blue in support of raising awareness of Cyclic Vomiting Syndrome!

Niagara Falls will be illuminated blue at 10:30 pm Eastern Standard time, for a duration of fifteen minutes. Please note that all Illumination times are approximate and is subject to change according to light conditions.

Don’t miss this ICONIC event! You can view it here on the live cam link: https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str

Please feel free to share so that families and friends can see the Falls illuminated while staying safe at home. Should you choose to view this event in person, please follow public health guidelines for visiting. Email pictures to the office at cvsa@cvsaonline.org or tag us on social media.

Special thanks to the Niagara Falls Illumination Board for their participation in this year’s event!

Other places lighting up blue to support CVS Awareness Day:

• Zakim Bridge (MA) – 3/5/22
• Longfellow Bridge (MA)- 3/5/22
• Fore River Bridge (MA)- 3/5/22
• Burns Bridge (MA)- 3/5/22
• Gilbert Water Tower (AZ)- 3/4/22 to 3/6/22

*If you are close to any of these locations please share any pictures with cvsa@cvsaonline.org or tag us on social media.

There may be more to come! Follow our social media pages for more information and added locations as we get closer to March 5th.

Here are some more ways that you can participate this year:

• Change your porch light to Blue
• Share this event on your social media channels
• Get your 2022 IAD Shirts at our bonfire store. Order before February 11th to ensure delivery by March 5th!
• Tag CVSA and use the hashtag #LightupCVSAwareness on social media
• Submit requests for buildings, bridges, and other places near you and share them with CVSA.

Here are some other ways to help raise awareness:

• Wear blue
• Wear a blue ribbon
• Dye your hair blue
• Host a local meet-up or fundraiser with social distancing precautions
• Take pamphlets or brochures to doctors and ER waiting rooms
• Wear a CVS Awareness t-shirt or mask
• Present information to classes or medical groups
• Volunteer for groups that are raising awareness and education for CVS
• Donate to groups raising awareness and education for CVS

Share your story on social media and ask people to share.

Create a Facebook Fundraiser benefiting the work that CVSA does, share your story on it, and ask your friends and family to share. CVSA has a new way for you to share your stories and support CVSA at the same time. We are introducing our new Classy.org pages where you can share your CVS journey in words, pictures, and videos; you can update it at any time. Classy has a user-friendly interface where templates have already been set up, you just need to fill in your story and update it as you please. Then share it with your family and friends via email or social media.

Visit: https://www.classy.org/campaign/share-your-story/c331675 to get started.

Whatever you choose to do, we want to hear about it. Send us an email or share what you do on social media. Don’t forget to tag us @Cyclic Vomiting Syndrome Association or #CVSA #CyclicVomitingSyndrome Association #CVSAwareness

International Awareness Day 2021

In 2021, CVSA is encouraging everyone to use our #oneword printable to share your own word to describe CVS. After you print it and write your one word. Please consider sharing it on social media and tag CVSA so we can share it on our page as well. Find the #oneword printable here.

Excerpt from: Ross, Helen. “Helping hands: TOUR players trying to raise awareness of rare disease”. PGATOUR.COM. 4 March 2020.

This week, a group of PGA TOUR players are going to help Bryant, the golf coach at Kennesaw State, his wife Abbi, and daughter Charley (pictured below) raise awareness about the rare disorder. At the Arnold Palmer Invitational presented by MasterCard, J.T. Poston, Keith Mitchell, Harris English (pictured below), Kevin Kisner and Brian Harman will be wearing the blue ribbon of the Cyclic Vomiting Syndrome Association.

It’s a family affair, in more ways than one. Four of the players are Georgia alums like Bryant and Abbi. Bryant later coached Poston at Western Carolina – and was among those celebrating at Sedgefield Country Club last August when he made the Wyndham Championship his first TOUR title. “It just shows us how blessed we are to have friends and family that they keep up with us and care about our situation, and they want to use their platform to help,” says Bryant, who won the 2001 SEC Championship and played one year on the Korn Ferry Tour before deciding to go into coaching. “And it’s satisfying to know that we can help some people because we know what a difficult time, we’ve had going through it.” A year ago, the same five players made donations for birdies and bogeys during the entire month of March. This year, though, the decision was made to focus attention on this week since Thursday is international Cyclic Vomiting Syndrome Aware- ness day. On Thursday Charley’s class wore blue in honor of CVS International Day (Pictured below)

The CVS awareness ribbons being worn by some PGA tour members was just one way more attention was brought to CVS on March 5th. As you can see below, many efforts were made to bring much needed attention to CVS.