From PGATOUR.com ORLANDO, Fla. – On her good days, Charley Odom is an energetic 5-year-old with big purple glasses who loves to dress up like Elsa and her older sister Anna, the princesses in Disney’s wildly popular “Frozen” movies. She likes to watch “Paw Patrol” and she’s hooked on the “Elephant and Piggie” books, too.…
My journey about living with Cyclic Vomiting Syndrome, and never giving up – Always Keep Fighting.
My name is Luke Mosteller and I am twenty-five years old. I am writing this in the hope I can help anyone out who is going through his or her own struggle with CVS. When I was eighteen, my fight with CVS began and an eight-year battle ensued. Growing up, I was the picture of…
Kate Conner of Kansas has a gift, and she has shared her gift with all of us living with CVS. Kate has used her gift to create a Quilt of Hope for all to see, and for us to share with the rest of the world as we educate them about CVS. Kate came up…
“Hope starts here” has always been a beacon of encouragement to our family, and I am writing to you with a story of hope that I thought might interest and encourage others. Briefly, my son Dustin began having episodes of what we eventually learned was CVS when he was about 9. He would be sick…
My daughter, Alyssa, was diagnosed with CVS. Alyssa has always been an over achiever. This year she is attending her senior year of college, playing sports such as soccer and softball, and works for the city recreation department, doing coaching and refereeing games. Plus she is looking for a second job! Four months ago, when…
My daughter started getting her episodes around five years old. We would take her to her doctor and would be told it’s just a stomach bug. Years of this stomach bug, and yet my other two children never got this bug. Finally, her doctor wasn’t available, so we had to see the PA. She couldn’t…
By Tiffany Sharpe When I became a mother, I didn’t think about what could go wrong. All I could think about was holding her for so long. Then it started when she was about a year old. We saw doctor after doctor and no answers were told. We finally found the right avenue. Someone who knows what we are going…
My daughter, Mollie, was born in 1978 on her sister’s sixth birthday after a happy and uneventful pregnancy. Her four-year-old brother was ready for another sister and her red-headed, freckled-faced presence filled our house with joy. At approximately 12 months old, Mollie was diagnosed with mild unidentified global developmental delays. When Mollie was about one…
I have had CVS for almost 2 year; I got it shortly after I had my son. I was getting defeated with how terribly I was treated by both my doctor and the ER. I started feeling like it wouldn’t get any better and my life as a productive adult was gone. But my dad…
ANNOUNCEMENT OF PUBLICATION OF ADULT GUIDELINES – JUNE 2019 It is with a great deal of gratitude and satisfaction that the Cyclic Vomiting Syndrome Association (CVSA) is announcing the publication of a special four-article supplement to the journal Neurogastroenterology and Motility. Guidelines on Management of Cyclic Vomiting Syndrome in Adults by the American Neurogastroenterology and Motility…
For most people, an unsettled stomach is a passing inconvenience; at its worst, a vomiting episode is at least followed by relief. But for those who suffer from a seemingly rare chronic vomiting illness, no amount of throwing up can stop the nausea. Such is the case with Natalie Robertson of Chico, Calif. One of the…
Author of On the Origin of Species suffered from cyclical vomiting syndrome, says Australian doctor. read full article
Chandra Wilson and her daughter Sarina talked with “The Doctors” about CVS. February 23, 2011.
Julia Benway, 12, of Geneva is active at Excel Gymnas- tics. Benway was diagnosed with Cyclic Vomiting Syn- drome and has an episode of severe vomiting every 11 weeks. GENEVA – On a bright fall morning in 2004, Shelley Kupetis was running errands with her 4-year-old daughter, Julia Benway. “I have a headache,” the then-Geneva…
Danielle Campbell is a senior at Berkeley Prep and suffers from Cyclic Vomiting Syndrome. TAMPA – Danielle Campbell is a typical high school senior who works hard at getting good grades, is a popular athlete, enjoys an active social life, and can’t wait to move on to college and the next chapter in her life.…
She’s just 28 years old and should be living life to the maximum. But Lucy Maven, from Stockton, is struggling to cope with a rare condition that can make her vomit up to 100 times a day. At their worst, the monthly sickness attacks leave her in hospital and on a drip for days at a…
Erin Delman, 25, is a fourth-year PhD student of earth system sciences, specifically studying the relationship between climate change and conflict, at the University of California Irvine. After years of violent, unexplained vomiting, she was diagnosed just three months ago with cyclic vomiting syndrome (CVS), a condition so rare that the exact number of patients is…
“GREY’S ANATOMY” Featured Adult Patient with CVS Episode Aired November 15th, based on illness of the daughter of Actor/Director Chandra Wilson. CAN YOU GET LINK FROM WEBSITE? A Message from Chandra At the 2012 CVSA family conference, I was specifically asked by our sufferers to find a way to get CVS onto Grey’s Anatomy. Historically,…
Live Q&A: When stomach aches & vomiting become serious in kids Are you concerned about the frequency or intensity of a child’s stomach aches or vomiting? Could it be abdominal migraines or cyclic vomiting syndrome? Tune into this live Q&A with Dr. Kovacic, a pediatric gastroenterologist within the Gastroenterology, Liver and Nutrition Program at Children’s…
We reported earlier this week about Brad Ferguson of Kamloops, who died from complications from a rare disorder, and the reaction we received from readers near and far suggest those complications are common among sufferers. Ferguson, 29, was diagnosed two years ago with Cyclic Vomiting Syndrome, which affects roughly two per cent of the population.…
‘HE’D HAVE TO WAIT SOMETIMES FOR SIX, SEVEN HOURS UNTIL THEY COULD GIVE HIM THE HYDRATION… EIGHT HOURS OF WAITING.” KAMLOOPS – Brad Ferguson loved life, family, gaming and reading. These are the characteristics Lynnette and Mike Ferguson will hold close to them after their son’s sudden and unexpected death last month. Lynnette and Mike…
BELL COUNTY, TX (KXXV) – A young girl in Bell County is struggling to live a normal life after being diagnosed with a disorder that causes vomiting flares. Kaylee Coats, 14, spends a lot of time in her room, but it’s not always by choice. Kaylee has cyclic vomiting syndrome, a disorder that causes sudden, repeated…
