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My journey about living with Cyclic Vomiting Syndrome, and never giving up – Always Keep Fighting.

Category: Stories of HopeBy admin January 30, 2019 Leave a comment

Cyclic Vomiting Syndrome Association

#CVSAwareness #OneWord #CVSA cyclic vomiting syndrome awareness

Cyclic Vomiting Syndrome Association1 day ago

“Migraine of the stomach” is a phrase sometimes used to help explain the connection between migraine and conditions like CVS and abdominal migraine.
But CVS and abdominal migraine are two distinct conditions. They can occur individually, or they can occur together.

Understanding the connection while recognizing the differences matters. Hear more about this on the "Episodes" podcast: cvsaonline.org/stories/cvsa-podcast-episodes/

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Cyclic Vomiting Syndrome Association3 days ago

Did you know? Many experts consider cyclic vomiting syndrome to be known as "migraine of the stomach."

CVS causes recurring episodes of severe nausea and vomiting that can last hours to days, often with symptom-free periods in between. It shares many features with migraine, including triggers, family history patterns, and some of the same treatments.

Learn more about the relationship between cyclic vomiting syndrome and migraine through our comorbidity article, in partnership with the Cyclic Vomiting Syndrome Association.

🔗https://www.migrainedisorders.org/cyclic-vomiting-syndrome/

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Cyclic Vomiting Syndrome Association3 days ago

“We were told our child didn’t need an education.”
How is that acceptable?
CVS can disrupt education at any age. But illness should never mean giving up the opportunity to learn.

Have you had to fight for your education because of CVS? We're talking about it on the "Episodes" podcast: cvsaonline.org/stories/cvsa-podcast-episodes/

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Cyclic Vomiting Syndrome Association1 week ago

Getting prompt access to medication at school shouldn’t have to be a battle.
In this clip for the "Episodes" podcast, we revisited our challenges getting access to CVS medication when it was needed during the school day.
Did your child face similar challenges? What helped?

Listen to "Episodes" and share your experience: cvsaonline.org/stories/cvsa-podcast-episodes/

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Cyclic Vomiting Syndrome Association1 week ago

One thing we learned the hard way: document everything.
School meetings, conversations, decisions, accommodations. Keeping a record can help when you're trying to advocate for a child with CVS.
And if something doesn't work? Try again.

Hear more about navigating school with CVS on the “Episodes” podcast: cvsaonline.org/stories/cvsa-podcast-episodes/

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Cyclic Vomiting Syndrome Association2 weeks ago

You shouldn't have to "power through" to be taken seriously. For people living with migraine, CVS, and other misunderstood conditions, that message does real harm.
On the latest "Episodes" Podcast, we talk with Association of Migraine Disorders about stigma, and about the resources they're building to change those conversations. Change starts with understanding, support, and access to good information.

Check out "Episodes" here: https://www.youtube.com/playlist?list=PL-DvUZGZHJX8iD2j9eUVhSEqeDG2qZK9t

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