CVS is a devastating and debilitating disease that takes so much from the lives of patients and those who care about them. And yet, despite the suffering, we hear so many inspiring stories of courage, hope, and triumph.

Do you have such a story? If so, please send consider emailing it to us so that we can feature it here. Let your inspiration bring hope to others! If you would like to submit your story to our website and/or newsletter, please email the CVSA office, at

Here are a few such stories:

Anna’s CVS Journey

– Submitted By: Sarah S. Our daughter Anna, is currently 16-years old. CVS rocked our world for the first 5…

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Nina’s Story

My journey about living with Cyclic Vomiting Syndrome, and never giving up – Always Keep Fighting.

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Luke’s story

My name is Luke Mosteller and I am twenty-five years old. I am writing this in the hope I can…

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Mikki’s Letter

“Hope starts here” has always been a beacon of encouragement to our family, and I am writing to you with…

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Alyssa’s Story

My daughter, Alyssa, was diagnosed with CVS. Alyssa has always been an over achiever. This year she is attending her…

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Breaking the Silence

By Tiffany Sharpe  When I became a mother, I didn’t think about what could go wrong. All I could think about…

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Mollie’s Story

My daughter, Mollie, was born in 1978 on her sister’s sixth birthday after a happy and uneventful pregnancy. Her four-year-old…

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