– Submitted By: Sarah S. Our daughter Anna, is currently 16-years old. CVS rocked our world for the first 5 3/4 years of Anna’s life. And I mean ROCKED, in a bad way. People kept asking me “why is Anna sick all of the time?” I had no idea. I thought kids just got sick.…
My journey about living with Cyclic Vomiting Syndrome, and never giving up – Always Keep Fighting.
My name is Luke Mosteller and I am twenty-five years old. I am writing this in the hope I can help anyone out who is going through his or her own struggle with CVS. When I was eighteen, my fight with CVS began and an eight-year battle ensued. Growing up, I was the picture of…
Kate Conner of Kansas has a gift, and she has shared her gift with all of us living with CVS. Kate has used her gift to create a Quilt of Hope for all to see, and for us to share with the rest of the world as we educate them about CVS. Kate came up…
“Hope starts here” has always been a beacon of encouragement to our family, and I am writing to you with a story of hope that I thought might interest and encourage others. Briefly, my son Dustin began having episodes of what we eventually learned was CVS when he was about 9. He would be sick…
My daughter, Alyssa, was diagnosed with CVS. Alyssa has always been an over achiever. This year she is attending her senior year of college, playing sports such as soccer and softball, and works for the city recreation department, doing coaching and refereeing games. Plus she is looking for a second job! Four months ago, when…
My daughter started getting her episodes around five years old. We would take her to her doctor and would be told it’s just a stomach bug. Years of this stomach bug, and yet my other two children never got this bug. Finally, her doctor wasn’t available, so we had to see the PA. She couldn’t…
By Tiffany Sharpe When I became a mother, I didn’t think about what could go wrong. All I could think about was holding her for so long. Then it started when she was about a year old. We saw doctor after doctor and no answers were told. We finally found the right avenue. Someone who knows what we are going…
My daughter, Mollie, was born in 1978 on her sister’s sixth birthday after a happy and uneventful pregnancy. Her four-year-old brother was ready for another sister and her red-headed, freckled-faced presence filled our house with joy. At approximately 12 months old, Mollie was diagnosed with mild unidentified global developmental delays. When Mollie was about one…
I have had CVS for almost 2 year; I got it shortly after I had my son. I was getting defeated with how terribly I was treated by both my doctor and the ER. I started feeling like it wouldn’t get any better and my life as a productive adult was gone. But my dad…
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